While this journey has just begun, and the road ahead is challenging, we also believe it is full of hope. We know this because of the generosity of family, friends, neighbors, and strangers alike who are willing to donate their hard earned dollars to fund gene therapy for children like sweet five-year-old Joseph Hann who have a rare neuro-degenerative disease called Batten. To those who have made their first donation, we want to say thank you, and so does Joseph!

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