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Blog

Fox News 4, Southlake, UTSouthwestern and Jojo together to fight against Batten

Author : Gina Hann Date : November 5, 2017 Comment : No Comments

Thank you FOX NEWS 4 Dallas for sharing our Batten Hope Story!

Category : Blog batten cln7, batten disease, cln7, dallas, ut southwestern gene therapy Read More

Team Stats are Updated!

Author : Gina Hann Date : October 24, 2017 Comment : No Comments

We are about 65% to our first milestone: First Clinical Trial Vector Development. Special thanks to our teams!

Category : Blog Read More

Engineering Hope Video

Author : Gina Hann Date : September 20, 2017 Comment : No Comments

Engineers and Family. A video about Batten Hope

Category : Blog Batten Hope Video, Texas Instruments Read More

Batten Hope Radio Interview – Jeff Crilley Show

Author : Gina Hann Date : August 24, 2017 Comment : No Comments

Want to learn more about the gene therapy trial we are working for? Listen to our radio interview with Dr. Minassian on the Jeff Crilley show!

Category : Blog, Media batten disease, clinical trial, gene therapy, UTSW Read More

You did it! Thank YOU!!!

Author : Gina Hann Date : July 25, 2017 Comment : No Comments

FAQ’s about Joseph, and many thanks to you for helping us reach our first financial goal!

Category : Blog batten, batten hope, faq, fundraising for hope, Team Batten Hope Read More

Joseph’s Journey: This brain-smart diet is good for your kid too!

Author : Gina Hann Date : July 23, 2017 Comment : No Comments

If your kiddo needs help with focusing and mood, Jojo’s diet may be a good starting point!

Category : Blog alzheimers diet, Batten diet, brain efficiency, epilepsy diet, ketogenic, parkinsons diet Read More

Team Batten Hope – Allen, TX

Author : Team Batten Hope Date : July 23, 2017 Comment : No Comments

This family has a lot to be grateful for – but we are so grateful to them for leading Team Batten Hope – Allen, TX!

Category : Blog Allen TX, Beckman, Team Batten Hope, Texas Instruments Read More

Welcome to Team Batten Hope!

Author : Gina Hann Date : June 16, 2017 Comment : No Comments

With Team Batten Hope, we will be able to fund the vector for a family like ours, or a family like yours…@battenhope

Category : Blog Read More

Joseph’s Journey – Today

Author : Gina Hann Date : June 12, 2017 Comment : No Comments

A lot is happening with Joseph, and despite the challenges we have a lot to smile about…

Category : Blog Amazing Journey, Joseph's Journey, Today Read More

Joseph meets Dr. Gray

Author : Meagan Pollock Date : June 6, 2017 Comment : No Comments

Awesome day yesterday! Jojo got to meet the doctor who designed the vector that could save his life – we just need help to build it now!

Category : Blog Read More
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100% of your dollars go toward the research, and we cannot accomplish the $1.2M clinical trial at UT Southwestern and Children’s Health in Dallas without your support.

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