Lets talk about learnings on the what, why and where of making it work as a rare disease parent….
One year after a “terminal” diagnosis…
One year ago we were told to make end of life plans. This is what has happened since…
Fox News 4, Southlake, UTSouthwestern and Jojo together to fight against Batten
Thank you FOX NEWS 4 Dallas for sharing our Batten Hope Story!