This journey has brought us to today, so are we most thankful for? Every. Day. Awesome.

This journey has brought us to today, so are we most thankful for? Every. Day. Awesome.
What do you get when you combine zebra stripes, kindergartners, and rare disease day? Pretty much pure awesome…
Milestones aren’t always easy, but they are essential. Together we are moving closer to a cure for Batten disease.
Awesome news – another milestone in the journey to clinical trial!
Welcome to Tip #2 as a new rare disease parent – time to build your “A-TEAM”…
Welcome to being a rare disease parent. I haven’t been here that long, but I have learned a few pointers so far…
Thank you FOX NEWS 4 Dallas for sharing our Batten Hope Story!
Want to learn more about the gene therapy trial we are working for? Listen to our radio interview with Dr. Minassian on the Jeff Crilley show!