This journey has brought us to today, so are we most thankful for? Every. Day. Awesome.
Why participate in a CLN7 natural history study?
Milestones aren’t always easy, but they are essential. Together we are moving closer to a cure for Batten disease.
Top five tips I’ve learned as a rare disease parent – Tip #2
Welcome to Tip #2 as a new rare disease parent – time to build your “A-TEAM”…
Top five tips I’ve learned as a rare disease parent – Tip #1
Welcome to being a rare disease parent. I haven’t been here that long, but I have learned a few pointers so far…
Batten Hope Radio Interview – Jeff Crilley Show
Want to learn more about the gene therapy trial we are working for? Listen to our radio interview with Dr. Minassian on the Jeff Crilley show!