Here's how you can help:

Your help is pivotal in raising necessary funds and awareness. Every dollar and effort makes a difference in getting closer to our goal–we cannot do this without you.

1 — DONATE to BATTEN HOPE
1 — DONATE to BATTEN HOPE

Single gifts, monthly donations, planned giving... Every dollar counts!

2 — HOST A FUNDRAISING TEAM/EVENT
2 — HOST A FUNDRAISING TEAM/EVENT

We love to share our story and our vision for ending rare disease. Gather friends, share our story and help us to raise funds for a local event - or plan your own!

3 — SHARE
3 — SHARE

Ask your friends and colleagues to donate, and join us on social media to stay up to date.

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Latest updates from our Blog

Stay current on how Joseph is doing, milestones toward our Batten CLN7 trial, and on the work we are doing at Batten Hope to give Joseph a chance at life. Together we can end Batten CLN7!

Top five tips I have learned as a rare disease parent – Tip #3

Lets talk about learnings on the what, why and where of making it work as a rare disease parent....

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Top five tips I’ve learned as a rare disease parent – Tip #2

Welcome to Tip #2 as a new rare disease parent - time to build your "A-TEAM"...

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Top five tips I’ve learned as a rare disease parent – Tip #1

Welcome to being a rare disease parent. I haven’t been here that long, but I have learned a few pointers so far...

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Southlake Carroll Dragons for Hope – Happy Birthday Jojo!

What does an awesome birthday look like? A day with the Southlake Carroll Dragon Varsity team!

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The Research Team

As of yet, there is no cure for Batten Disease. However, we are currently working on building a clinical trial for CLN7. We have partnered with a team of scientists and doctors at UT Southwestern and Children’s Health in Dallas, who have made significant progress in development that will enable a potential trial for Joseph’s form of Batten CLN7 and other neurodegenerative diseases affecting children. We have committed to serving the vision of this team’s work toward realizing gene therapy trials in Dallas, starting with Batten CLN7.

Berge A. Minassian, MD

Chief of Pediatric Neurology, UT Southwestern

Berge A. Minassian, MD
Steven Gray, PhD

Assistant Professor, UT Southwestern

Steven Gray, PhD

The Batten Hope Fund of Dallas Foundation

The Dallas Foundation serves as a leader, catalyst and resource for philanthropy by providing donors with flexible means of making gifts and bequests, the income from which primarily supports the charitable causes of the city and county of Dallas. Batten Hope is a Fund of the Dallas Foundation, allowing charitable donations to be received under their 501(c)(3) status.

Gina Hann

Joseph's Mom; Batten Founder; Marketing Manager, Texas Instruments

Gina Hann
Meagan Pollock, PhD

Executive Director, Design Connect Create

Meagan Pollock, PhD
Ameet Bagwe

Engineer, TI and Co-founder of Leanscience.fit

Ameet Bagwe
Kevin Calandro, CFP®

Chartered Advisor in Philanthropy®, Merrill Lynch

Kevin Calandro, CFP®
Joseph Coniglio

Attorney and Managing Shareholder, Greenberg Traurig LLP

Joseph Coniglio

Our Partners