Here's how you can help:

Batten Hope is a non-profit working to fund life-saving gene therapy for children fighting terminal Batten CLN7 disease. We are working in 2019 to complete our current project of funding the final stages of dose development to get Joseph to treatment. We are almost there! You can help:

1 — DONATE to BATTEN HOPE
1 — DONATE to BATTEN HOPE

Single gifts, monthly donations, planned giving... we need your help to raise the remaining $200k needed for a CLN7 treatment.

2 — HOST A FUNDRAISING TEAM/EVENT
2 — HOST A FUNDRAISING TEAM/EVENT

We love to share our story and our vision for ending rare disease. Gather friends, share our story and help us to raise funds for a local event - or plan your own! Ask us how.

3 — SHARE
3 — SHARE

Stay involved - follow our social pages, sponsor a Facebook fundraiser for Jojo, and share our stories of hope!

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Latest updates from our Blog

Stay current on how Joseph is doing, milestones toward our Batten CLN7 trial, and on the work we are doing at Batten Hope to give Joseph a chance at life. Together we can end Batten CLN7!

Giving Thanks in 2019

This journey has brought us to today, so are we most thankful for? Every. Day. Awesome.

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Why kindergartners should rule the world.

What do you get when you combine zebra stripes, kindergartners, and rare disease day? Pretty much pure awesome...

Read More

Why participate in a CLN7 natural history study?

Milestones aren't always easy, but they are essential. Together we are moving closer to a cure for Batten disease.

Read More

Our Instagram feed will light up your life.

Be Insta-Inspired

The Research Team

As of yet, there is no cure for Batten Disease. However, we are currently working on building a clinical trial for CLN7. We have partnered with a team of scientists and doctors at UT Southwestern and Children’s Health in Dallas, who have made significant progress in development that will enable a potential trial for Joseph’s form of Batten CLN7 and other neurodegenerative diseases affecting children. We have committed to serving the vision of this team’s work toward realizing gene therapy trials in Dallas, starting with Batten CLN7.

Berge A. Minassian, MD

Chief of Pediatric Neurology, UT Southwestern

Berge A. Minassian, MD
Steven Gray, PhD

Assistant Professor, UT Southwestern

Steven Gray, PhD

The Batten Hope Fund of Dallas Foundation

The Dallas Foundation serves as a leader, catalyst and resource for philanthropy by providing donors with flexible means of making gifts and bequests, the income from which primarily supports the charitable causes of the city and county of Dallas. Batten Hope is a Fund of the Dallas Foundation, allowing charitable donations to be received under their 501(c)(3) status.

Gina Hann

Joseph's Mom; Batten Founder; Marketing Manager, Texas Instruments

Gina Hann
Meagan Pollock, PhD

Executive Director, Design Connect Create

Meagan Pollock, PhD
Ameet Bagwe

Engineer, TI and Co-founder of Leanscience.fit

Ameet Bagwe
Kevin Calandro, CFP®

Chartered Advisor in Philanthropy®, Merrill Lynch

Kevin Calandro, CFP®
Joseph Coniglio

Attorney and Managing Shareholder, Greenberg Traurig LLP

Joseph Coniglio

Our Partners