Here's how you can help:

Your help is pivotal in raising necessary funds and awareness. Every dollar and effort makes a difference in getting closer to our goal–we cannot do this without you.

1 — DONATE to BATTEN HOPE
1 — DONATE to BATTEN HOPE

Single gifts, monthly donations, planned giving... Every dollar counts!

2 — HOST A FUNDRAISING TEAM/EVENT
2 — HOST A FUNDRAISING TEAM/EVENT

Gather friends to raise funds for a local event, or plan your own!

3 — SHARE
3 — SHARE

Ask your friends and colleagues to donate, and join us on social media to stay up to date.

I "mustache" you a question? Will you join my team?

Check the stats or start your own team!

Latest updates from our Blog

Stay current on how Joseph is doing, how the research is progressing, and on the work we are doing at Batten Hope to give Joseph a chance at life.

Dragon Youth Football Night!

Jojo had a great weekend with the Southlake Dragons - awesome!! We love these young men and their heart!

Read More

Team Stats are Updated!

We are about 65% to our first milestone: First Clinical Trial Vector Development. Special thanks to our teams!

Read More

Engineering Hope Video

Engineers and Family. A video about Batten Hope

Read More

The Research Team

As of yet, there is no cure for Batten Disease. However, we have partnered with a team of scientists and doctors at UT Southwestern and Children’s in Dallas, who have made significant progress in development that will enable a potential trial for Joseph’s form of Batten and other neurodegenerative diseases affecting children. We have committed to serving the vision of this team’s work toward realizing gene therapy trials in Dallas, starting with Joseph’s form of Batten.

Berge A. Minassian, MD

Chief of Pediatric Neurology, UT Southwestern

Berge A. Minassian, MD
Steven Gray, PhD

Assistant Professor, University of North Carolina

Steven Gray, PhD

The Batten Hope Fund of Dallas Foundation

The Dallas Foundation serves as a leader, catalyst and resource for philanthropy by providing donors with flexible means of making gifts and bequests, the income from which primarily supports the charitable causes of the city and county of Dallas. Batten Hope is a Fund of the Dallas Foundation, allowing charitable donations to be received under their 501(c)(3) status.

Gina Hann

Joseph's Mom; Batten Founder; Marketing Manager, Texas Instruments

Gina Hann
Meagan Pollock, PhD

Director of Professional Development, NAPE

Meagan Pollock, PhD
Roy D. Elterman, MD

President, Pediatric Epilepsy Research Foundation

Roy D. Elterman, MD
Kevin Calandro, CFP®

Chartered Advisor in Philanthropy®, Merrill Lynch

Kevin Calandro, CFP®

Our Partners