Lets talk about learnings on the what, why and where of making it work as a rare disease parent….
Welcome to Tip #2 as a new rare disease parent – time to build your “A-TEAM”…
Welcome to being a rare disease parent. I haven’t been here that long, but I have learned a few pointers so far…
What does an awesome birthday look like? A day with the Southlake Carroll Dragon Varsity team!
One year ago we were told to make end of life plans. This is what has happened since…
Join us on March 25, 2018 at Kendra Scott in Southlake Town Square, where 20% of your purchase will be donated to the Batten Hope Foundation.
Thank you FOX NEWS 4 Dallas for sharing our Batten Hope Story!
We are about 65% to our first milestone: First Clinical Trial Vector Development. Special thanks to our teams!
Engineers and Family. A video about Batten Hope
Want to learn more about the gene therapy trial we are working for? Listen to our radio interview with Dr. Minassian on the Jeff Crilley show!